Here we are, two weeks before our trip, one week before my tummy poke and two hours before a speech therapist evaluates my voice, of which little remains and I find myself wondering whether I've been on any kind of track conducive to better health or not.
I fight myself constantly, beating my brains to a pulp, shredding my mind, obliquely aware that as ALS shuts down my body, screwing with what's left is nothing less than foolish. Nonetheless, I still battle, fight rather than flight, not sure what else to do, singularly aware of my Custer mentality. Not fighting seems counter productive to me, though fighting an unidentifiable enemy blindly hasn't seemed to have slowed the onslaught to my body. I have concluded little over the last couple of years outside of the dreary realization that much of what I theorized last year constitutes today's condition. I need to refrain from prediction. I am sick of my own cluelessness. Every day the bar lowers for me. I guess when it lies upon the floor and I can no longer crawl beneath it, I die. Morbid as it sounds, simple and straightforward, the reality remains complicated and unfocused, less morbid yet more depressing. All of this negativity constitutes the core of my illness, I know. Escaping this enigma is paramount. Not fighting or running leaves me in a quandary. I find myself anything but predisposed to solutions other. Pardon my word-weird sentence structure, sometimes it helps feed my inner evil, visualizing readers struggling over whether I'm trying to be clever or whether I'm just dumb. Joke's on you, joke's on me.
I fight myself constantly, beating my brains to a pulp, shredding my mind, obliquely aware that as ALS shuts down my body, screwing with what's left is nothing less than foolish. Nonetheless, I still battle, fight rather than flight, not sure what else to do, singularly aware of my Custer mentality. Not fighting seems counter productive to me, though fighting an unidentifiable enemy blindly hasn't seemed to have slowed the onslaught to my body. I have concluded little over the last couple of years outside of the dreary realization that much of what I theorized last year constitutes today's condition. I need to refrain from prediction. I am sick of my own cluelessness. Every day the bar lowers for me. I guess when it lies upon the floor and I can no longer crawl beneath it, I die. Morbid as it sounds, simple and straightforward, the reality remains complicated and unfocused, less morbid yet more depressing. All of this negativity constitutes the core of my illness, I know. Escaping this enigma is paramount. Not fighting or running leaves me in a quandary. I find myself anything but predisposed to solutions other. Pardon my word-weird sentence structure, sometimes it helps feed my inner evil, visualizing readers struggling over whether I'm trying to be clever or whether I'm just dumb. Joke's on you, joke's on me.
no joke unfortunatly. never stop fighting,even when you know the outcome.
ReplyDeleteNo one every really knows now do they? That's the adventure of life.
DeleteEvery single one of us is dying from the minute we are born but we
don't choose to look at it that way.
You live until you don't. Live every day not like it's your last
but like you expect to live forever!! Enjoy life no matter if
it's for a day a week or a year. Anything other than that is a waste of life.
Clever you are. :) Enjoy it when out you let your inner evil, I do.
ReplyDeleteoooohhh be careful what you ask for......
DeleteYou know Tracy.....After you get used to a person's style of writing you don't notice the different sentence structure.
ReplyDeleteokay you smarty pantses. just 'cuz you pointed it out don't mean you know the rightest way of saying what
Deleteever yu all were meaning. Yur gonna haven to do better than that to impress me.
"I find myself anything but predisposed to solutions other." I rather liked that bit. :-) It's not like you are attempting technical writing--like trying to write a user manual. On second thought, perhaps you are. As long as we don't come with useful manuals, we might as well have poetic ones.
ReplyDelete